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Activists say Academia Sinica project an 'invasion' of privacy

抗議者表示 中研院的計劃侵犯隱私權

Activists say Academia Sinica project an 'invasion' of privacy

Human rights activists have blasted a program recently launched by Academia Sinica's Institute of Biomedicine to collect blood samples of a large number of native Taiwanese for research purposes.


The activists have accused the program of infringing on the privacy of local residents, and vowed to appeal to the Office of the United Nations Human Rights Commissioner and other international organizations for support in opposing the program.


Institute of Biomedicine Director Chen Yuan-tsung said yesterday that a task force under his leadership began last August to study the feasibility of setting up a“Taiwan Biobank.”The goal was to determine the causes, transmittance methods, and treatment of some of the most common indigenous diseases, such as hepatitis B.


This program was jointly introduced by the National Science Council and the Health Department in 2004 at the recommendation of the Executive Yuan's Science and Technology Advisory Group, and would not be carried out until 2007, even if the NSC approves it after the Lunar New Year holiday.


Chen said the project is necessary to learn more about diseases endemic to Taiwan because the local diet and lifestyle is different from those in other countries.


He added, however, that the government may call the program off if opinion polls find that most people are opposed to the idea.


Sources said, however, that the Department of Health will launch a test program to collect 15,000 blood samples in Chiayi, Hualien, and Miaoli counties later this year.


“Our goal is to collect 200,000 blood samples in Taiwan to facilitate systematic research of some indigenous diseases in order to understand their causes and ways of treating them,”Chen said.


Liu Ching-yi, an associate professor at the Graduate School of National Development Studies at National Taiwan University, said Academia Sinica conducted a small program in 2003 that collected blood samples from 3,000 people to set a smaller-scale Biobank.


Many people offered their blood samples in exchange for free health checkups, but did not know that the samples would be used for long-term research purposes. The research would trace their genes, residences, and medical histories and determine how these factors could influence their offspring for generations to come, Liu said.


NSC Development Department Director Chung Pang-chu said his agency is fully aware of the ethical, legal and social impacts of setting up the Taiwan Biobank.


“We have begun studying related issues in preparing a comprehensive assessment report and will not carry the program out before the government has fully discussed it with the people,”he said.